Rochelle Maybon is getting on board with a movement that started in the UK with a woman wearing the same Phelan Lucky t-shirt for more than 365 days straight (in multiple versions of the same design, of course.)
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“She wore it to weddings, functions, work, everywhere,” Mrs Maybon said.
For the past three years people from all over the globe have been purchasing and sporting their Phelan Lucky t-shirts to help raise awareness for the rare genetic syndrome called Phelan-McDermid Syndrome.
While not quite dedicating a year to the endeavour, Mrs Maybon has just completed a month of wearing the shirt every day, and plans another assault in November.
It’s all about educating people on the syndrome which results from a deletion or malformation of part of gene 22, leading to a myriad of medical conditions. Mrs Maybon’s son Logan is wheelchair-bound, non-verbal, requires a pureed diet and is developmentally-delayed.
While awareness of the syndrome is proportionally high in Glen Innes thanks to community efforts to help the family, Mrs Maybon is happy to proudly wear the Phelan Lucky t-shirt to do her bit to raise the profile of the rare condition even further. Make sure to acknowledge her efforts when you next see her around town Phelan Lucky.
